Insurance and genetic testing: where are we now?

@article{citeulike:1775793, abstract = {Basic research will spur development of genetic tests that are capable of presymptomatic prediction of disease, disability, and premature death in presently asymptomatic individuals. Concerns have been expressed about potential harms related to the use of genetic test results, especially loss of confidentiality, eugenics, and discrimination. Existing laws and administrative policies may not be sufficient to assure that genetic information is used fairly. To provide factual information and conceptual principles upon which sound social policy can be based, the Human Genome Initiative established an Ethical, Legal, and Social Issues Program. Among the first areas to be identified as a priority for study was insurance. This paper provides a review of life, health, and disability insurance systems, including basic principles, risk classification, and market and regulatory issues, and examines the potential impact of genetic information on the insurance industry.}, address = {Department of Pediatrics, New York University Medical Center, New York 10016.}, author = {Ostrer, H. and Allen, W. and Crandall, L. A. and Moseley, R. E. and Dewar, M. A. and Nye, D. and McCrary, S. V. }, citeulike-article-id = {1775793}, issn = {0002-9297}, journal = {Am J Hum Genet}, keywords = {disability-insurance, genetic-testing, health-insurance, insurance, legal, life-insurance, policy}, month = {March}, number = {3}, pages = {565--577}, posted-at = {2007-10-16 19:14:13}, priority = {2}, title = {Insurance and genetic testing: where are we now?}, url = {http://view.ncbi.nlm.nih.gov/pubmed/8447322}, volume = {52}, year = {1993} }

TY - JOUR ID - citeulike:1775793 L3 - citeulike-article-id:1775793 TI - Insurance and genetic testing: where are we now? JF - Am J Hum Genet VL - 52 IS - 3 SP - 565 EP - 577 AD - Department of Pediatrics, New York University Medical Center, New York 10016. SN - 0002-9297 N2 - Basic research will spur development of genetic tests that are capable of presymptomatic prediction of disease, disability, and premature death in presently asymptomatic individuals. Concerns have been expressed about potential harms related to the use of genetic test results, especially loss of confidentiality, eugenics, and discrimination. Existing laws and administrative policies may not be sufficient to assure that genetic information is used fairly. To provide factual information and conceptual principles upon which sound social policy can be based, the Human Genome Initiative established an Ethical, Legal, and Social Issues Program. Among the first areas to be identified as a priority for study was insurance. This paper provides a review of life, health, and disability insurance systems, including basic principles, risk classification, and market and regulatory issues, and examines the potential impact of genetic information on the insurance industry. KW - disability-insurance KW - genetic-testing KW - health-insurance KW - insurance KW - legal KW - life-insurance KW - policy AU - Ostrer, H AU - Allen, W AU - Crandall, LA AU - Moseley, RE AU - Dewar, MA AU - Nye, D AU - McCrary, SV PY - 1993/03// UR - http://view.ncbi.nlm.nih.gov/pubmed/8447322 ER -