How do women decide? Accepting or declining BRCA1/2 testing in a nationwide clinical sample in the United States.

@article{citeulike:688842, abstract = {OBJECTIVE: To examine the role of the practitioner, informed consent, and genetic counseling in genetic testing decisions and to assess their relative influence on women's decision to have clinical BRCA1/2 testing. METHODS: Qualitative study using in-depth open-ended interviews with 68 women who had considered clinical BRCA1/2 testing. RESULTS: Slightly less than half of the women who had considered BRCA1/2 testing were found to have had a clear and preexisting desire to test or not to test, irrespective of practitioner attitude or advice. CONCLUSION: The decision to accept or decline genetic testing is the result of a complex process that goes beyond interactions between health care providers and patients, indicating a caution against exclusive reliance on informed consent or counseling encounters.}, address = {Center for Bioethics, University of Pennsylvania, Philadelphia, PA 19104, USA. sankarp@mail.med.upenn.edu}, author = {Sankar, P. and Wolpe, P. R. and Jones, N. L. and Cho, M. }, citeulike-article-id = {688842}, doi = {10.1159/000091484}, issn = {1422-2795}, journal = {Community Genet}, keywords = {at-risk-women, brca1-2, cancer-and-genetics, genetic-testing, medical-decision-making}, number = {2}, pages = {78--86}, posted-at = {2007-09-21 20:02:56}, priority = {2}, title = {How do women decide? Accepting or declining BRCA1/2 testing in a nationwide clinical sample in the United States.}, url = {http://dx.doi.org/10.1159/000091484}, volume = {9}, year = {2006} }

TY - JOUR ID - citeulike:688842 L3 - citeulike-article-id:688842 TI - How do women decide? Accepting or declining BRCA1/2 testing in a nationwide clinical sample in the United States. JF - Community Genet VL - 9 IS - 2 SP - 78 EP - 86 AD - Center for Bioethics, University of Pennsylvania, Philadelphia, PA 19104, USA. sankarp@mail.med.upenn.edu SN - 1422-2795 N2 - OBJECTIVE: To examine the role of the practitioner, informed consent, and genetic counseling in genetic testing decisions and to assess their relative influence on women's decision to have clinical BRCA1/2 testing. METHODS: Qualitative study using in-depth open-ended interviews with 68 women who had considered clinical BRCA1/2 testing. RESULTS: Slightly less than half of the women who had considered BRCA1/2 testing were found to have had a clear and preexisting desire to test or not to test, irrespective of practitioner attitude or advice. CONCLUSION: The decision to accept or decline genetic testing is the result of a complex process that goes beyond interactions between health care providers and patients, indicating a caution against exclusive reliance on informed consent or counseling encounters. KW - at-risk-women KW - brca1-2 KW - cancer-and-genetics KW - genetic-testing KW - medical-decision-making AU - Sankar, P AU - Wolpe, PR AU - Jones, NL AU - Cho, M PY - 2006/// UR - http://dx.doi.org/10.1159/000091484 ER -