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elsiatcase cystic-fibrosis [34 articles]

Recent papers added to elsiatcase library classified by the tag cystic-fibrosis. You can also see everyone's cystic-fibrosis.
  • Issues in implementing prenatal screening for cystic fibrosis: results of a working conference.
    Genet Med, Vol. 1, No. 4. (n 1999), pp. 129-135.
    by JE Haddow, LA Bradley, GE Palomaki, RA Doherty, BA Bernhardt, DJ Brock, B Cheuvront, GC Cunningham, AE Donnenfeld, JL Erickson, HA Erlich, RM Ferrie, SC FitzSimmons, MF Greene, WW Grody, PK Haddow, H Harris, LB Holmes, RR Howell, M Katz, KW Klinger, EM Kloza, ML LeFevre, S Little, G Loeben, M McGovern, RE Pyeritz, PT Rowley, RK Saiki, MP Short, J Tabone, NJ Wald, NL Wilker, DR Witt
    posted to cystic-fibrosis medical-practice prenatal-screening routinizing-screening-into-prenatal- by elsiatcase on 2007-09-27 18:52:18 as **
  • Issues in implementing prenatal screening for cystic fibrosis: results of a working conference.
    J Med Screen, Vol. 6, No. 2. (1999), pp. 60-66.
    by JE Haddow, LA Bradley, GE Palomaki, RA Doherty
    posted to cystic-fibrosis genetic-testing prenatal-screening routininzing-screening-into-prenatal-medical-practice by elsiatcase on 2007-09-27 18:50:30 as **
  • Cystic fibrosis carrier screening: knowledge and attitudes of prenatal care providers.
    Am J Prev Med, Vol. 9, No. 5. (t 1993), pp. 261-266.
    by PT Rowley, S Loader, JC Levenkron, CE Phelps
    posted to carrier-screening cystic-fibrosis genetic-testing prenatal-care-providers by elsiatcase on 2007-09-27 18:48:03 as **
  • Cystic fibrosis carrier population screening in the primary care setting.
    Am J Hum Genet, Vol. 59, No. 1. (July 1996), pp. 234-247.
    by S Loader, P Caldwell, A Kozyra, JC Levenkron, CD Boehm, HH Kazazian, PT Rowley
    posted to carrier-screening cystic-fibrosis population-screening primary-care by elsiatcase on 2007-09-27 18:45:23 as **
  • Carrier screening for cystic fibrosis: test acceptance and one year follow-up.
    Am J Med Genet, Vol. 73, No. 4. (31 December 1997), pp. 378-386.
    by JC Levenkron, S Loader, PT Rowley
    posted to carrier-screening cystic-fibrosis follow-up genetic-testing test-acceptance by elsiatcase on 2007-09-27 18:43:17 as **
  • Cystic fibrosis carrier population screening: a review.
    Genet Test, Vol. 1, No. 1. (1997), pp. 53-59.
    by PT Rowley, S Loader, JC Levenkron
    posted to carrier cystic-fibrosis genetic-testing population-screening by elsiatcase on 2007-09-27 18:41:49 as **
  • Prenatal screening for cystic fibrosis carriers: an economic evaluation.
    Am J Hum Genet, Vol. 63, No. 4. (October 1998), pp. 1160-1174.
    by PT Rowley, S Loader, RM Kaplan
    posted to carriers cystic-fibrosis economic-evaluation genetic-testing prenatal-screening by elsiatcase on 2007-09-27 18:39:46 as **
  • Prenatal genetic carrier testing using triple disease screening.
    JAMA, Vol. 278, No. 15. (15 October 1997), pp. 1268-1272.
    by CM Eng, C Schechter, J Robinowitz, G Fulop, T Burgert, B Levy, R Zinberg, RJ Desnick
    posted to ashkenazi-jewish cystic-fibrosis gaucher-disease genetic-counseling prenatal-genetic-carrier-testing prenatal-genetic-testing tay-sachs triple-disease-screening by elsiatcase on 2006-10-26 15:01:14 as **
  • National policy development for the clinical application of genetic diagnostic technologies. Lessons from cystic fibrosis.
    JAMA, Vol. 270, No. 24. (9 1993), pp. 2948-2954.
    by BS Wilfond, K Nolan
    posted to carrier-screening cystic-fibrosis genetic-diagnostic-technologies genetic-testing national- policy-development by elsiatcase on 2006-10-24 14:13:38 as ** along with 1 person and 1 group cgreal CGREL
  • Biotechnology and the Diagnosis of Genetic Disease: Forum on the Technical, Regulatory and Societal Issues (Final Report)
    (1991)
    by Suzanne Wilkinson, Seymour Perry
    posted to biotechnology cystic-fibrosis diagnos-of-genetic-disease genetic-counseling genetic-information genetic-testing health-insurance technical-regulatory-social-issues by elsiatcase on 2006-10-23 14:56:15 as **
  • Gender differences in psychosocial reactions to cystic fibrosis carrier testing.
    Am J Med Genet, Vol. 113, No. 2. (22 November 2002), pp. 151-157.
    by JE Newman, JR Sorenson, BM DeVellis, B Cheuvront
    posted to carrier-testing cystic-fibrosis gender-differences psychosocial-outcomes by elsiatcase on 2006-10-23 13:42:39 as **
  • CF carrier testing in a high risk population: anxiety, risk perceptions, and reproductive plans of carrier by "non-carrier" couples.
    Genet Med, Vol. 1, No. 7. (c 1999), pp. 323-327.
    by NP Callanan, BJ Cheuvront, JR Sorenson
    posted to carrier-testing cystic-fibrosis genetic-counseling reproductive-uncertainty risk-perceptions by elsiatcase on 2006-10-23 13:41:09 as **
  • Psychosocial and educational outcomes associated with home- and clinic-based pretest education and cystic fibrosis carrier testing among a population of at-risk relatives.
    Am J Med Genet, Vol. 75, No. 5. (17 February 1998), pp. 461-468.
    by B Cheuvront, JR Sorensen, NP Callanan, SC Stearns, BM DeVellis
    posted to carrier-testing cystic-fibrosis knowledge psychosocial-sequelae satisfaction by elsiatcase on 2006-10-23 13:39:44 as **
  • Acceptance of home and clinic-based cystic fibrosis carrier education and testing by first, second, and third degree relatives of cystic fibrosis patients.
    Am J Med Genet., Vol. 70, No. 2. (16 May 1997), pp. 121-129.
    by Sorenson, B Cheuvront, B Devellis, N Callanan, L Silverman, G Koch, T Sharp, G Fernald
    posted to carrier-testing carrier-testing-relatives cystic-fibrosis genetic-counseling genetic-education by elsiatcase on 2006-10-23 13:32:05 as **
  • Proband and parent assistance in identifying relatives for cystic fibrosis carrier testing.
    Am J Med Genet, Vol. 63, No. 3. (14 June 1996), pp. 419-425.
    by JR Sorenson, B Cheuvront, A Bruning, S Talton, B DeVellis, G Koch, N Callanan, G Fernald
    posted to carrier-testing carrier-testing-recruitment cystic-fibrosis genetic-counseling genetic-education by elsiatcase on 2006-10-23 13:25:44 as **
  • CF Carrier Testing: Experience of Relatives
    Journal of Genetic Counseling, Vol. 4, No. 2. (1995), pp. 83-95.
    by Nancy Callanan, Diane Bloom, James Sorenson, Brenda Devillis, Brian Cheuvront
    posted to carrier-testing cystic-fibrosis family-history by elsiatcase on 2006-10-23 13:20:05 as **
  • Offering cystic fibrosis carrier screening to an HMO population: factors associated with utilization.
    Am J Hum Genet, Vol. 55, No. 4. (October 1994), pp. 626-637.
    by ES Tambor, BA Bernhardt, GA Chase, RR Faden, G Geller, KJ Hofman, NA Holtzman
    posted to carrier-screening cystic-fibrosis hmo medical-decision-making test-utlilization by elsiatcase on 2006-10-17 20:26:35 as **
  • Attitudes of physicians and genetics professionals toward cystic fibrosis carrier screening.
    Am J Med Genet, Vol. 50, No. 1. (1 March 1994), pp. 1-11.
    by RR Faden, ES Tambor, GA Chase, G Geller, KJ Hofman, NA Holtzman
    posted to attitudes carrier-screening cystic-fibrosis genetics-professionals physicians by elsiatcase on 2006-10-17 20:17:00 as **
  • PCR-based screening for cystic fibrosis carrier mutations in an ethnically diverse pregnant population.
    Am J Hum Genet, Vol. 60, No. 4. (April 1997), pp. 935-947.
    by WW Grody, C Dunkel-Schetter, ZH Tatsugawa, MA Fox, CY Fang, RM Cantor, JM Novak, HN Bass, BF Crandall
    posted to cystic-fibrosis pcr-based-screening population-based-screening-of-genetically-heterogeneous-disorders pregnant-women psychosocial-impact by elsiatcase on 2006-10-13 17:56:53 as **
  • Genetic counseling and neonatal screening for cystic fibrosis: an assessment of the communication process.
    Pediatrics, Vol. 107, No. 4. (April 2001), pp. 699-705.
    by DJ Ciske, A Haavisto, A Laxova, LZ Rock, PM Farrell
    posted to communication cystic-fibrosis genetic-counseling heterozygote neonatal-screening newborn-screening risk-communication by elsiatcase on 2006-10-13 16:41:11 as **
  • Family Values and Resistance to Genetic Testing
    pp. 153-179.
    by Diana Beeson, Teresa Doksum
    posted to attitudes cystic-fibrosis family-history family-values genetic-testing genetic-testing-programs moral-justification-for-rejecting-genetic-testing narratives nonbiomedical-narratives resistance-to-new-genetic-technologies sickle-cell-disease by elsiatcase on 2006-10-13 15:41:24 as **
  • Still Living with Cystic Fibrosis: The Well Sibling Revisited
    (1992), pp. 228-229.
    by Joanna Fanos, John Johnson
    posted to cystic-fibrosis family-relations well-sibling by elsiatcase on 2006-10-10 13:44:44 as **
  • Education and Testing Strategy for Large-Scale Cystic Fibrosis Carrier Screening
    Journal of Genetic Counseling, Vol. 3, No. 4. (1994), pp. 279-289.
    by Zina H Tatsugawa, Michelle A Fox, Carolyn Y Fang, Jessica M Novak, Rita M Cantor, Harold N Bass, Christine Dunkel-Schetter, Barbara F Crandall, Wayne W Grody
    posted to cystic-fibrosis cystic-fibrosis-carrier-screening genetic-counseling mutation-detection polymerase-chain-reaction by elsiatcase on 2006-10-08 20:57:50 as **
  • Attitudes toward genetic carrier screening for cystic fibrosis among pregnant women: the role of health beliefs and avoidant coping style.
    Womens Health, Vol. 3, No. 1. (1997), pp. 31-51.
    by CY Fang, C Dunkel-Schetter, ZH Tatsugawa, MA Fox, HN Bass, BF Crandall, WW Grody
    posted to attitudes avoidant-coping-style cystic-fibrosis genetic-carrier-screening health-beliefs pregnant-women psychosocial-factors by elsiatcase on 2006-10-08 20:53:06 as **
  • Educating patients about cystic fibrosis carrier screening in a primary care setting.
    Arch Fam Med, Vol. 5, No. 6. (June 1996), pp. 336-340.
    by BA Bernhardt, GA Chase, RR Faden, G Geller, KJ Hofman, ES Tambor, NA Holtzman
    posted to carrier-screening cystic-fibrosis primary-care by elsiatcase on 2006-10-07 02:33:22 as **
  • Cystic Fibrosis, Molecular Diagnosis, Population Screening, and Public Policy
    Arch Pathl Lab-Med, Vol. 123 (November 1999), pp. 1041-1046.
    by Wayne Grody
    posted to cystic-fibrosis genetic-testing molecular-diagnosis population-screening public-policy by elsiatcase on 2006-10-05 15:28:24 as **
  • The Human Genome Project and Women: Cystic Fibrosis: A Case Study
    Journal of Women's Health, Vol. 4, No. 6. (1995), pp. 623-635.
    by Lucille Lester, Amy Lemke, Dana Levinson, Mary Mahowald
    posted to cystic-fibrosis gender-differences-and-cystic-fibrosis gender-differences-genetic-technologies by elsiatcase on 2006-10-04 15:19:22 as **
  • Genetic Testing and Counseling
    pp. 393-410.
    by Joanna Fanos, John P Johnson
    edited by B Lask, M Bluebond-Langner, D Angst
    posted to carrier-status cystic-fibrosis genetic-diagnosis-in-asymptomatic-individual newborn-screening parents-of-child-with-cf population-screening siblings testing-children-and-adolescents-for-carrier-status by elsiatcase on 2006-10-04 14:06:20 as **
  • Barriers to carrier testing for adult cystic fibrosis sibs: the importance of not knowing.
    Am J Med Genet, Vol. 59, No. 1. (23 October 1995), pp. 85-91.
    by JH Fanos, JP Johnson
    posted to barriers-to-carrier-testing cystic-fibrosis family-relations predictive-testing by elsiatcase on 2006-10-04 13:59:15 as **
  • Perception of carrier status by cystic fibrosis siblings.
    Am J Hum Genet, Vol. 57, No. 2. (August 1995), pp. 431-438.
    by JH Fanos, JP Johnson
    posted to cystic-fibrosis family-relations predictive-genetic-testing by elsiatcase on 2006-10-04 13:58:02 as **
  • Clarification needed to cystic fibrosis model.
    Am J Obstet Gynecol, Vol. 169, No. 5. (November 1993), pp. 1358-1359.
    by B Gettig, V Venne
    posted to carrier-screening cystic-fibrosis by elsiatcase on 2006-09-21 14:04:52 as **
  • Genetic screening for reproductive planning: methodological and conceptual issues in policy analysis.
    Am J Public Health, Vol. 86, No. 5. (May 1996), pp. 684-690.
    by DA Asch, JC Hershey, MV Pauly, JP Patton, MK Jedrziewski, MT Mennuti
    posted to cost-effectiveness cystic-fibrosis prenatal-genetic-screening by elsiatcase on 2006-09-21 13:59:36 as **
  • Pathways and Barriers to Genetic Testing and Screening: Molecular Genetics Meets the "High-Risk Family"
    pp. 1-48.
    by Troy Duster, Diane Beeson
    posted to barriers-to-genetic-testing-and-screening cystic-fibrosis doe-elsi-funded family-members family-relations high-risk lived-experience popular-attitudes predictive-genetic-testing sickle-cell-disease social-cultural- by elsiatcase on 2006-09-18 19:51:38 as **
  • Cystic fibrosis and the pediatric caregiver: benefits and burdens of genetic technology.
    Pediatr Nurs, Vol. 21, No. 1. (b 1995), pp. 57-61.
    by G Geller
    posted to benefits-and-burdens-of-technology cystic-fibrosis ethical-issues family-relationships genetic-testing pediatric-caregivers by elsiatcase on 2006-09-18 19:13:07 as **
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