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jasonbobe elsi [31 articles]

Recent papers added to jasonbobe library classified by the tag elsi. You can also see everyone's elsi.
  • U.S. System of Oversight of Genetic Testing: A Response to the Charge of the Secretary of Health and Human Services
    (March 2008)
    posted to regulation genetic-testing elsi dtc by jasonbobe on 2008-06-04 23:12:52 as read
  • Communicating the results of clinical research to participants: attitudes, practices, and future directions.
    PLoS medicine, Vol. 5, No. 5. (13 May 2008)
    by DI Shalowitz, FG Miller
    posted to virtuous-circle elsi disclosure by jasonbobe on 2008-06-04 23:07:24 as ***** along with 1 person HelenaK
  • Genetics Bill Cruises Through Senate
    Nature, Vol. 451 (May 2008)
    by M Wadman
    posted to nondiscrimination gina elsi by jasonbobe on 2008-05-07 21:21:19 as read
  • Out of Sequence: How Consumer Genomics Could Displace Clinical Genetics
    Nature Reviews Genetics (2008)
    by MW Foster, RR Sharp
    posted to elsi dtc by jasonbobe on 2008-05-07 21:13:55 as **
  • The incidentalome: a threat to genomic medicine.
    JAMA : the journal of the American Medical Association, Vol. 296, No. 2. (12 July 2006), pp. 212-215.
    by IS Kohane, DR Masys, RB Altman
    posted to incidentalome genomics elsi by jasonbobe on 2008-05-02 23:11:33 as read
  • Is it ethical to keep interim findings of randomised controlled trials confidential?
    Journal of medical ethics, Vol. 34, No. 3. (March 2008), pp. 198-201.
    by FG Miller, D Wendler
    posted to disclosure elsi study-design by jasonbobe on 2008-04-02 20:54:06 as **** along with 1 person PredictER
  • Currents in Contemporary Ethics
    The Journal of Law, Medicine & Ethics, Vol. 36, No. 1. (2008), pp. 174-178.
    by Rothstein, A Mark
    posted to discrimination elsi gina legislation nondiscrimination policy by jasonbobe on 2008-04-02 20:52:15 as **** along with 1 person PredictER
  • Genetic predictive testing and private insurances.
    Health Policy, Vol. 18, No. 3. (August 1991), pp. 197-206.
    by HD Abbing
    posted to elsi insurance by jasonbobe on 2008-04-02 20:47:22 as ** along with 1 person PredictER
  • Multiplex genetic testing. The Council on Ethical and Judicial Affairs, American Medical Association.
    Hastings Cent Rep, Vol. 28, No. 4. (g 1998), pp. 15-21.
    posted to elsi mutliplex by jasonbobe on 2008-04-02 20:34:33 as **** along with 1 person PredictER
  • ASHG report. Statement on informed consent for genetic research. The American Society of Human Genetics.
    Am J Hum Genet, Vol. 59, No. 2. (August 1996), pp. 471-474.
    posted to consent elsi by jasonbobe on 2008-04-02 20:33:19 as **** along with 1 person PredictER
  • Genetic testing and insurance. The Ad Hoc Committee on Genetic Testing/Insurance Issues.
    Am J Hum Genet, Vol. 56, No. 1. (January 1995), pp. 327-331.
    posted to elsi insurance by jasonbobe on 2008-04-02 20:32:44 as ** along with 1 person PredictER
  • Genetic testing and breach of patient confidentiality: Law, ethics, and pragmatics.
    Am J Obstet Gynecol (8 March 2008)
    by Howard Minkoff, Jeffrey Ecker
    posted to confidentiality duty_to_warn elsi by jasonbobe on 2008-04-02 20:31:49 as **** along with 1 person PredictER
  • From genetic privacy to open consent.
    Nature reviews. Genetics (1 April 2008)
    by Jeantine E E Lunshof, Ruth Chadwick, Daniel B B Vorhaus, George M M Church
    posted to consent elsi open-consent privacy by jasonbobe on 2008-04-02 19:48:45 as read along with 3 people jyuh hpiwowar PredictER
  • Ethics of phase 1 oncology studies: reexamining the arguments and data.
    JAMA : the journal of the American Medical Association, Vol. 290, No. 8. (27 August 2003), pp. 1075-1082.
    by M Agrawal, EJ Emanuel
    posted to consent elsi participatory-research by jasonbobe on 2008-04-02 06:04:07 as read
  • Ethical, legal, and social implications of biobanks for genetics research.
    Adv Genet, Vol. 60 (2008), pp. 505-544.
    by SB Haga, LM Beskow
    posted to biobanks elsi by jasonbobe on 2008-03-26 15:18:26 as read along with 4 people mfm11 CurAbility PredictER PAULIUS07
  • Research Ethics Recommendations for Whole-Genome Research: Consensus Statement
    PLoS Biology, Vol. 6, No. 3. (1 March 2008), e73.
    by Timothy Caulfield, Amy L Mcguire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh, Eric T Juengst, Jane Kaye, Laurence Kedes, Bartha M Knoppers, Trudo Lemmens, Eric M Meslin, Juli Murphy, Robert L Nussbaum, Margaret Otlowski, Daryl Pullman, Peter N Ray, Jeremy Sugarman, Michael Timmons
    posted to consent disclosure elsi genomics by jasonbobe on 2008-03-26 13:20:55 as read along with 2 people cntbioet PredictER
  • Eugenomics: Eugenics and Ethics in the 21st Century
    Genomics, Society and Policy, Vol. 2, No. 2. (2006), pp. 28-49.
    by Julie M Aultman
    posted to elsi eubionics eugenics by jasonbobe on 2008-02-23 18:57:26 as read
  • Telling the truth about genomics.
    Commun Med, Vol. 1, No. 2. (2004), pp. 193-199.
    by R Chadwick
    posted to elsi genomics veracity by jasonbobe on 2008-02-12 20:49:53 as ****
  • Finding Criminals Through DNA of Their Relatives.
    Science (11 May 2006)
    by Frederick R R Bieber, Charles H H Brenner, David Lazer
    posted to elsi forensic geneticdata genomic-data genomics privacy riskdb risks by jasonbobe on 2008-01-23 18:29:15 as read along with 1 person and 2 groups dchughes G4ID Genetics-of-Gambling
  • Research ethics and the challenge of whole-genome sequencing
    Nat Rev Genet, Vol. 2008, No. 2. (February 2008), pp. 152-156.
    by Amy L Mcguire, Timothy Caulfield, Mildred K Cho
    posted to disclosure elsi personalgenomics researchdesign study-design by jasonbobe on 2008-01-23 18:14:39 as read along with 2 people dchughes PredictER
  • Luck, Genes, and Equality
    The Journal of Law, Medicine & Ethics, Vol. 35, No. 4. (2007), pp. 712-726.
    by Fox, Dov
    posted to elsi by jasonbobe on 2008-01-22 01:33:12 as ** along with 1 person PredictER
  • A timely harvest
    Nature, Vol. 450, No. 7167. (07 November 2007), pp. 174-174.
    by Pierre-Benoit Joly, Arie Rip
    posted to elsi policy public-engagement by jasonbobe on 2008-01-22 01:30:02 as ** along with 2 people ricmilne PredictER
  • Health care in the age of genetic medicine.
    JAMA, Vol. 298, No. 22. (12 December 2007), pp. 2670-2672.
    by JP Evans
    posted to elsi future genetics healthcare medicine policy by jasonbobe on 2007-12-31 16:07:04 as read along with 1 person PredictER
  • Information Disclosure in Population-Based Research Involving Genetics: A Framework for the Practice of Ethics in Epidemiology.
    Ann Epidemiol (11 December 2007)
    by Vicki L L Kristman, Nancy Kreiger
    posted to disclosure elsi genetics by jasonbobe on 2007-12-20 21:58:33 as ***** along with 1 person PredictER
  • "It's like Tuskegee in reverse": a case study of ethical tensions in institutional review board review of community-based participatory research.
    Am J Public Health, Vol. 96, No. 11. (November 2006), pp. 1914-1919.
    by RE Malone, VB Yerger, C McGruder, E Froelicher
    posted to cbr community elsi irb participatory-research by jasonbobe on 2007-12-20 20:35:38 as ****
  • Ethical dilemmas in community-based participatory research: recommendations for institutional review boards.
    J Urban Health, Vol. 84, No. 4. (July 2007), pp. 478-493.
    by S Flicker, R Travers, A Guta, S McDonald, A Meagher
    posted to community crb elsi irb partcipatory-research by jasonbobe on 2007-12-20 20:31:58 as **** along with 1 person PredictER
  • Privacy in genetics research.
    Science, Vol. 285, No. 5432. (27 August 1999), pp. 1359-1361.
    by BP Fuller, MJ Kahn, PA Barr, L Biesecker, E Crowley, J Garber, MK Mansoura, P Murphy, J Murray, J Phillips, K Rothenberg, M Rothstein, J Stopfer, G Swergold, B Weber, FK Collins, KL Hudson
    posted to elsi genetics policy privacy by jasonbobe on 2007-12-13 03:19:19 as read along with 1 person and 1 group ladygoat CGREL
  • Certificates of confidentiality in research: rationale and usage.
    Genet Test, Vol. 8, No. 2. (2004), pp. 214-220.
    by ZN Cooper, RM Nelson, LF Ross
    posted to coc elsi genetics irb policy privacy by jasonbobe on 2007-12-13 02:33:54 as ***
  • Certificates of confidentiality.
    Genet Test, Vol. 8, No. 2. (2004), pp. 77-78.
    by PR Reilly
    posted to coc elsi irb policy privacy research by jasonbobe on 2007-12-13 02:30:41 as ****
  • Genetics and privacy.
    Am J Law Med, Vol. 28, No. 2-3. (2002), pp. 285-307.
    by JL Hustead, J Goldman
    posted to elsi genetics law policy privacy by jasonbobe on 2007-07-22 00:05:57 as **
  • Ancillary risk information and pharmacogenetic tests: social and policy implications
    The Pharmacogenomics Journal, Vol. aop, No. current.
    by NB Henrikson, W Burke, DL Veenstra
    posted to elsi incidentaloma pgx risk by jasonbobe on 2007-05-23 00:40:08 as *** along with 2 people elsiatcase PredictER
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