Building on relationships of trust in biobank research.

by: M G G Hansson

J Med Ethics, Vol. 31, No. 7. (July 2005), pp. 415-418.

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Abstract

Trust among current and future patients is essential for the success of biobank research. The submission of an informed consent is an act of trust by a patient or a research subject, but a strict application of the rule of informed consent may not be sensitive to the multiplicity of patient interests at stake, and could thus be detrimental to trust. According to a recently proposed law on "genetic integrity" in Sweden, third parties will be prohibited from requesting or seeking genetic information about an individual. Cumbersome restrictions on research may be lifted, thus creating a more favourable climate for medical research.

@article{citeulike:246456, abstract = {Trust among current and future patients is essential for the success of biobank research. The submission of an informed consent is an act of trust by a patient or a research subject, but a strict application of the rule of informed consent may not be sensitive to the multiplicity of patient interests at stake, and could thus be detrimental to trust. According to a recently proposed law on "genetic integrity" in Sweden, third parties will be prohibited from requesting or seeking genetic information about an individual. Cumbersome restrictions on research may be lifted, thus creating a more favourable climate for medical research.}, address = {Centre for Bioethics at Karolinska Institute \& Uppsala University, Uppsala Science Park, Uppsala, Sweden SE-751 85 Uppsa, Sweden. mats.hansson@bioethics.uu.se.}, author = {Hansson, M G G. }, citeulike-article-id = {246456}, doi = {10.1136/jme.2004.009456}, issn = {0306-6800}, journal = {J Med Ethics}, keywords = {biobanks}, month = {July}, number = {7}, pages = {415--418}, posted-at = {2005-07-05 20:45:07}, priority = {2}, title = {Building on relationships of trust in biobank research.}, url = {http://dx.doi.org/10.1136/jme.2004.009456}, volume = {31}, year = {2005} }

RIS record

TY - JOUR ID - citeulike:246456 L3 - citeulike-article-id:246456 TI - Building on relationships of trust in biobank research. JF - J Med Ethics VL - 31 IS - 7 SP - 415 EP - 418 AD - Centre for Bioethics at Karolinska Institute & Uppsala University, Uppsala Science Park, Uppsala, Sweden SE-751 85 Uppsa, Sweden. mats.hansson@bioethics.uu.se. SN - 0306-6800 N2 - Trust among current and future patients is essential for the success of biobank research. The submission of an informed consent is an act of trust by a patient or a research subject, but a strict application of the rule of informed consent may not be sensitive to the multiplicity of patient interests at stake, and could thus be detrimental to trust. According to a recently proposed law on "genetic integrity" in Sweden, third parties will be prohibited from requesting or seeking genetic information about an individual. Cumbersome restrictions on research may be lifted, thus creating a more favourable climate for medical research. KW - biobanks AU - Hansson, M G PY - 2005/07// UR - http://dx.doi.org/10.1136/jme.2004.009456 ER -

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